Our Story

From the minute Matthew and I saw Abigail’s ultrasound picture, we were so in love. Abigail’s estimated due date was April 16th 2014 and we were so eager to finally meet our little girl. I had a fairly easy pregnancy and we welcomed Abigail into this world on April 21st 2014. Labor and delivery were quick and easy. Before we knew it we were bringing Abigail home to spend the rest of our lives loving her. Abigail hit all of her early milestones on time. These milestones included holding her head up, rolling over, and sitting up..But soon, we started to notice things slowing down. Abigail did not start to crawl, she did not move at all until around her first birthday. When she did start to move it looked more like an army crawl. She used the top half of her body to move herself around. At this point, we had not seen any red flags. At about a year and a half, Abigail started crawling on her hands and knees. At about two years old, Abigail was starting to pull herself up to standing while using furniture. At two and a half years old, Abigail started to cruise. Right now, Abigail is less then a month away from her third birthday and she is starting to stand unassisted for 10-15 seconds. So why didn’t we catch on sooner? Well, every one tells you “she’ll do it when she’s ready” or “every child is different”. Even Abigail’s pediatrician brushed off her delayed milestones. We finally decided to take matters into our own hands and see what we could do to help our Abigail. We took her to countless doctors, including hearing specialists, neurologists, and orthopedic specialists. We always left with “We don’t see anything wrong with her.” along with the dreaded saying “She’ll do it when she’s ready”. After trying out a government provided therapy service that did not suit our family, we found Mt. Washington Pediatric Hospital. Since Abigail was a little over two years old, she has been in their outpatient therapy program for Speech Therapy, Occupational Therapy, and Physical Therapy. Abigail has bonded with her therapists and looks forward to going to therapy every single week. Every 6 months Abigail’s therapists and Dr. A (her developmentalist) get together and look at Abigail’s progress. On March 1st 2017 was her last appointment with Dr. A. She is always so amazed by everything that Abigail has accomplished in the past 6+ months. A few days after this appointment, Abigail and I were back at Mt. Washington for Abby’s therapy sessions. While there, Dr. A found me, and pulled me aside while Abigail did her work in PT. Dr. A sat me down and wanted to explain to me her findings from Abigail’s last appointment before I saw the official documents in my mail in the following weeks. She asked me if I had ever heard of CP. My heart sank… So many thoughts started rushing through my head. She went on to explain that Cerebral Palsy affects body movement, muscle control, muscle coordination, muscle tone, reflex, posture and balance. Even though this diagnosis finally gave us an answer, it was horrible to swallow. Earlier that day, Abigail was just delayed/taking her time/catching up. Now, she is diagnosed with a permanent movement disorder that will affect her for the rest of her life..

We have had this information for about a month now and we have been very busy trying to set up Abby’s MRI’s and tests that will need to be done. Matthew and I are so thankful to have such a supportive relationship that makes this seem so much easier to handle. I am starting this blog because there is so much that I want to say and share. I am also using this to help our family and friends to stay updated with Abigail’s journey. Abigail is still the smartest, sweetest, most loving little girl that I have ever met. She is going to do such amazing things and I am so blessed to be her Mom.

 

For more information on Mild Cerebral Palsy click here

 

-Emily

7 Replies to “Our Story”

  1. First of all, Abigail is beautiful! Second, way to go mom and dad on being persistent and advocating for your daughter. So glad you guys finally got answers. Thank you for sharing your journey!

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  2. Abigail is in great hands! It sounds like she is doing amazing regardless of diagnosis. Sometimes the best things for these kids is just a lot of love from mommy and daddy. My girl is just over two and has CP. They think it will be mild too. But she isn’t sitting yet and still has miles to go with attempting to walk. But she’s amazing and a fighter. This is only just one part of our children’s stories. The rest has yet to unfold. ☺

    Liked by 1 person

    1. Thank you for reading and sharing your story! I would love to hear more about your daughter if you would like to personally contact me. It is such a good feeling to know that there is someone else out there going through the same struggles. ❤️

      Liked by 1 person

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